The last two and a half weeks have been all about learning patience. You would think that having a break from chemo would be very nice, but it is frustrating. My chemotherapy has been delayed two and a half weeks now. I am just waiting for my numbers to go up.
Even though my mind is sharp, my body is exhausted. There is no mental effort required on this one. It is all physical. I am at the mercy of my body waking up.
In order to have treatment, my bone marrow platelets have to be at 50,000. Instead, my platelets have been hibernating at around 24,000 – 40,000. A transfusion would get me to the desired numbers. However, with this round of chemo, it is very important for my safety that my body makes natural platelets. So chemo is on hold.
This has definitely been a test of my patience. It is a bit nerve wracking. I feel like I’m in a trap. If I have chemo when my numbers are low, it is very dangerous. But with an aggressive cancer, it is not good to delay too long either.
In a weird way you find comfort in having chemo. You know you’re at least moving forward, and fighting for something. But the last chemo also kicked my butt a bit. I have experienced some nerve damage in my body, and my legs and feet are always very numb. I walk with a sort of wobble these days. Like when you are in a car for eight hours, and then get out to stretch at a gas station. The main difference is that that this feeling doesn’t go away.
The doc said this kind of nerve damage is usually reversible over time. I of course naturally focused on the word usually. Ha.
Every other day, I go to the hospital and get the same news. The numbers are still not where they need to be. I actually have hair growing back on my head. Naturally, you start wondering what else could also be growing back.
I am trying to take my own past advise. Focus on what is in my control and accept what isn’t. It is a tough discipline to maintain, but I do my very best. I try as hard as I can to stay focused on that philosophy. It is very important that I only have small bad moments, and not bad days.
I will fully admit that I felt a bit grumpy a couple days ago. It lasted more than a moment. I got a bit angry at Cancer, and found myself just yearning for normalcy. I found myself just wanting to go to a Padres game, maybe grab a beer and sushi before the game with my friends. But it isn’t possible. So I had to have a serious conversation with myself to get out of that phase of impossibility.
I feel better now, and have my head on straight. But again, I find myself sitting at the hospital, waiting for the results of my next blood withdrawal. This process is much more than just about dealing with pain. It is about handling reality. It is about being patient.
While writing this, I just received my results… I am now at 46,000, up from 40,000. So 4,000 to go and I will start my chemo again. Fingers crossed it will be there by Tuesday :)